My wife has a birth defect known as arthrogryposis-multiplex-congenita. In simple terns it means that all of the major joints in her body are deformed. Some slightly out of allignment some are grossly deformed. One major symptom of this condition is that due to her poor sklelatel structure she easily looses balance and falls down (sometimes very hard).
We have been married for almost 10 years and here is our dilema.When we first married her condition was not that bad . she could walk (although with a pronounced limp) and could get through a normal day with only a moderate amount of difficulty. I had a very good job with good benefits including top notch insurance.
After we had our first child in 2000 her right hip started hurting. She began falling down a lot more frequently and finally she went to an orthapedist who told her that she would soon need to haver both her hips replaced. We put it off for a few years because we both wanted more children.The years went by and we had two more kids . The pain in her hips was by now unbearable and we decided it was time to do the surgery. So in 2005 she had the right one done and in 2006 she had the other replaced. Her hips were now feeling better but this did nothing to imrove her balance and she still falls on a regular basis . She has hit her head several times in the bathroom .
We took care of all the medical bills with the help of the insurance company as they arose. Mortgage was paid, car note was paid there were always groceries in the house and life was as good as we could expect with her condition.
In A[ril of 2007 I lost the job i had for the past 7 years due to layoff. I was out of work for about a month .I finally found a job but had to take a huge paycut (I went from making $65000.00 a year to $25000.00 a year).The insurance offered by new employer was far to expensive ($600.00 a month on a $2100.00 salary) I figured it was only temporary and something better would come along sooner or later.We paid the cobra for the insurance as long as we could we paid the mortgage and car notes as long as possible. but weeks turned into months and soon our savings were gone I cashed in my meager 401k and continued paying what I could. The months continued on and nothing better has come along on the employment front in January 2008 we could no longer afford to keep the insurance . In February she fell hard and Broke several bones in her hand although she went to the emergency room they said they could not treat her because there was no insurance and it was not considered a life threatening injury . They put her arm in a sling (not set no cast) and sent her home Her hand is still almost useless to this day. In June she fell again. This time she hurt her back and again she went to the emergency room after an x ray she was told that she herniated 2 discs in her back but again they could not help her they gave her some vicodin and sent her home. The months coninue to roll on and now we are having trouble paying the mortgage and the car. She has applied for disability but of course the government has denied her claim and the lawyer we spoke to said it may take years for the appeal.
We have spoken with several doctors wha say she needs surgery on her hand and her back the total amount needed for both operations is about $25000.00She also needs a motorized wheelchair so she can take care of the kids without cracking her head open we have priced those at about $3000.00. We are now forced to appeal to generosity of strangers any help you can give would be greatly appreciated
This is my first attempt at blogging so please bear with me. My name is Dave and my wifes name is Laura. we have 3 kids ages 8, 6 and 4. I never thought we would find ourselves in a position like this. I guess we are just another victim of the current economic downturn in America.
please keep her in your prayers.
Monday, February 2, 2009
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1 comment:
hi! i'm from a poor country in asia and have nothing to donate. i do have a suggestion though, put in some adsense ads to this site and i promise you i will regularly visit your site and your ads. you will get small amounts each click but if more people follow and visit your site, you might get $100 per month. at least this is a start. will pray for you and your family
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